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NessMay 12, 2026 at 9:22 AM EDT

🧵🧵 A repository of selected ME/CFS and Long Covid documentaries & shorts. Plus some current affairs reports, art films and archival footage * Compiled over a few years from web searches * Apologies for any links that have broken #MECFS #LongCovid #GreatestMEdicalScandal #MillionsMissing #May12th Content warnings: - some contain footage of people who are now deceased - some discuss suicide and death - may be harrowing to watch - older ones reflect attitudes of the time * Listings are 1st world & English language centric - it's a selection of what I've come across, in no particular order * Sorry if I've missed your work or your favourite clips * Listed for reference & awareness. Some aren't to my personal taste, but still represent someone's experience. A few I'm yet to watch 🌟 Gratitude to all creators and participants for sharing these stories, especially when unwell The Tangled Story of ME/CFS: CoUNREST (1:37:39) youtu.be, Denigration and Ignorance (1:11:36) dialogues-mecfs.co.uk, and the complete set of 'Dialogues for a neglected illness' films: dialogues-mecfs.co.uk

Voices from the Shadows (1:02:51) (Password: VOICES) vimeo.com

Left Out (46:47) youtu.be

UNREST (1:37:39) youtu.be

After Unrest (27:20) youtu.be

Perversely Dark (58:28) (Password: fenomen) vimeo.com

Doctors as Patients (with subtitles) (56:26) youtu.be

Chronic Fatigue Syndrome and ME (1:28:52) tubitv.com , also released as: What About ME? (1:25:13) watch.plex.tv

The Forgotten Plague: myalgic encephalomyelitis (1:07:17) yidio.com or youtu.be

ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies (16:28) youtu.be

Mysterious Illness: Living with ME/CFS | The mysterious disease that affects millions of people worldwide | DW Documentary (42:26) youtu.be

M.E. and Me - Newsbeat Documentaries (31:33) youtu.be

Animated documentary on ME/CFS (3:10) youtu.be

"One good day... and many bad ones" (1:52) youtu.be and others on Norges ME-forening - Rogaland Fylkeslag YouTube channel youtube.com

The days with ME (19:38) youtu.be , The prison of ME (12:17) youtu.be , Buried Alive with M.E. (with subtitles) (12:56) youtu.be and other videos on Anil about ME YouTube channel youtube.com

What is ME/CFS (5:48) youtu.be and other explainers on Bateman Horne Centre YouTube channel youtube.com

What is ME/CFS? (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) (7:14) youtu.be , ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) (26:53) youtu.be , Severe and Very Severe ME/CFS (Broken Battery) (8:29) youtu.be , ...

... ME/CFS - A Brief History - The Lost Decade (7:42) youtu.be, and other shorts on Broken Battery YouTube channel m.youtube.com

PEM - post exertional malaise (1:18) youtu.be and other shorts on Norges Myalgisk Encefalopati Forening YouTube channel (Norwegian ME Association) m.youtube.com

Hope To Our Hands (pay to view) vimeo.com

M.E. and me (My Story as a Teen with ME/CFS) youtu.be and other shorts on ME and me YouTube channel youtube.com

Spend a Week with M.E.(9:50) youtu.be

Tom Hennessy on MacNeil Lehrer, Living Hell, Larry King - 1992 (1:20:18) youtu.be (Living Hell is a 1993 documentary)

Not Just Fatigue (14:51) notjustfatigue.org and associated shorts on #NotJustFatigue vimeo channel vimeo.com

This is ME (42:48) youtu.be

This is ME - Myalgic Encephalomyelitis (4:05) youtu.be

Whitney Dafoe Palo Alto Online 2015 video (5:08) youtu.be

Life with very severe ME/CFS (6:43) youtu.be , What It Takes For A Severe ME/CFS Patient To Leave The House (6:10) youtu.be and others on Whitney Dafoe YouTube channel youtube.com

The World of One Room (6:30) youtu.be

Living with ME - Documentary (21:57) youtu.be

Invisible Illness - Stories of Chronic Fatigue Syndrome (11:42) youtu.be

Get Well Soon | Animated Short Film (1:53) youtu.be

Chronisch Krank - Chronisch Ignoriert: ME/CFS ("Chronically Ill - Chronically Ignored") (1:31:47) youtu.be In YouTube, you can go to Settings --> Captions --> English (auto-translated)

Shorts on the ÖG ME/CFS Youtube Channel youtube.com

Viel Leid, wenig Hilfe – Die Krankheit ME⧸CFS (Dok 1, ORF 2024) (46:29) youtu.be

Chronisches Fatigue-Syndrom ME/CFS – Ein Albtraum für die Betroffenen | Reportage | SRF Dok (32:56) youtu.be

Die unerhörte Krankheit - ein Film über ME/CFS (1:32:52) youtu.be

ME/CFS: Ich habe eine Erschöpfung, die sich keiner vorstellen kann | Y-Kollektiv (21:58) youtu.be

ME/CFS – Wie eine Mutter aus Flensburg im Dunkeln lebt (7:19) youtu.be

Kijken: Ziek maar gezond verklaard (40:38) bnnvara.nl

Chronisch krank: Wenn das Leben durch ME/CFS verschwindet I 37 Grad (18:27) youtu.be

Leben mit ME/CFS: Im Toten Winkel des Gesundheitssystems | Länderspiegel (17:51) youtu.be

6 years in bed: Will I ever get better? | CEILING SERVICE (5:06) youtu.be

The Invisible Ones - On Severe ME/CFS (9:04) youtu.be

The Golden Girls: Dorothy’s Struggle With CFS/ME – Awareness Video (17:01) youtu.be

Change for M.E.// The Last Great Medical Cover Up (36:26) vimeo.com

I remember ME (1:12:08) youtu.be

Mom Needs To Lie Down: The years and lives slept away by ME/CFS (11:26) youtu.be

Perspectives on ME/CFS: Solving the mystery of chronic fatigue syndrome (8:51) youtu.be

MIND THE ABYSS: Part 1 - "PRODROME" (Myalgic Encephalomyelitis - M.E.) (15:29) youtu.be , MIND THE ABYSS: Part 2 - "SYNDROME" - Preview (Myalgic Encephalomyelitis - M.E.) (6:11) youtu.be and other videos on SuddenOnset YouTube channel m.youtube.com

Why ME? (2019) | Short Film About Myalgic Encephalomyelitis (10:56) youtu.be

Life in the Shadowlands | An art film about my life with ME/CFS (15:01) youtu.be

Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (11:48) youtu.be

Discover M.E. film: An Animated Journey (6:39) youtu.be

An Existence Project | Paper Stop-motion Animation About ME/CFS (6:02) youtu.be

Exercise Actually Makes Chronic Fatigue Syndrome Worse - SciShow (8:12) youtu.be

Back to the Dark Ages - 2026 Easterseals Disability Film Challenge Entry (5:37) youtu.be

Strangely Optimistic - 2026 Easterseals Disability Film Challenge Entry (5:20) youtu.be

Spoon Theory based International Short Film - This is ME (Myalgic Encephalomyelitis) | CKF | UK (9:29) youtu.be

Wild Horses (26:13) vimeo.com

M.E.: Lives devastated - and sufferers told it's made up (12:13) youtu.be

The Unravelling - A Scientist. An Artist. A Father (16:31) vimeo.com

Opening Up About My Illness (9:18) youtu.be

What happens when you have a disease doctors can't diagnose | Jennifer Brea - TedX (17:07) youtu.be

Living with M.E - Short Documentary (7:52) youtu.be

What causes long COVID? - RAZOR Science Show (28:29) youtu.be

Spotlight on Myalgic Encephalomyelitis on Breakfast TVNZ for World ME Day, May 12, 2025 (8:54) youtu.be

Mothers with ME/CFS | Local Focus (7:27) youtu.be and Today is ME day | Local Focus (6:32) youtu.be

Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1 (7:49) youtu.be

Fighting Disbelief: Chronic Fatigue Syndrome (12:43) youtu.be

Dr. Anne Macintyre's Frontline Program about ME/CFS (Vintage VHS) (25:17) youtu.be

Sick and Tired – BBC Panorama (Nov. 1999) | Documentary on the mistreatment of children with ME/CFS (38:25) youtu.be

CFS and the CDC's Failure to Respond: Primetime Live (1996) (12:46) youtu.be

ME/CFS ITN report from September 1994 (2:13) and other videos on Maggie Wallace's YouTube ME/CFS Playlist, youtube.com

Chronically exhausted: The silent suffering behind ME/CFS | RTL Aktuell (22:23) youtu.be

ME/CFS in adolescents | NANO Documentary (13:00) youtu.be

ME/CFS-Betroffene Katrin - Meine Geschichte (13:41) youtu.be

What happened to Sophia Mirza who died from ME/CFS (7:48) youtu.be

27-year-old died from malnutrition due to severe ME, inquest finds (9:50) youtu.be

What About ME? - A Documentary by Luke Stephenson (10:33) youtu.be

Horizon "ME" Myalgic Encephalomyelitis June 1988 (48:29) youtu.be An image tracking fault may make this copy unsuitable for people with visual sensitivity.

Long Covid: A parallel pandemic (19:41) youtu.be

ME/CFS: Warum der Weg zur Diagnose so beschwerlich wie die Krankheit selbst ist (14:43) youtu.be

ME/CFS crash caught on camera (5:03) youtu.be and other videos in Galen Warden's YouTube channel youtube.com

Mila Hermisson's message to the world: "Learn About ME" (1:32) youtu.be

Justin's Long Covid Story - Canadian Covid Society (5:10) youtu.be and other shorts by Canadian Covid Society youtube.com

The Lingering Impact of Corona: Investigating the Aftermath of the Pandemic | GER (+ ENG sub) | WDR (44:43) youtu.be

"The pandemic isn’t over’: my year of long Covid – video" (7:55) theguardian.com

Post-Covid ME/CFS | Covid-19 Survivor Diaries Episode 12 (33:10) youtu.be and the COVID-19 Survivor Diaries series m.youtube.com

And a spoken word piece, Descriptions (54:08) descriptions.bandcamp.com